GETTING TO KNOW ABOUT THE RARE DISEASE.

Raising a child with special needs can sometimes feel isolating, especially with a diagnosis of a rare disease that not many know about. The Hill family in Naperville knows that life after the birth of their twins. Their daughter Mary had stolen their hearts and given them a reason to reach out to use to raise awareness about her condition. But naturally the mother believes that Mary the twin is incredible despite the fact that she has not shown the same growth achievement as her twin brother.  Mary has the rare Wolf-Hirschhorn syndrome.  The family hopes to raise awareness of this new and rare disease.

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